Winsford author comes to Winsford Library to tell her son's story that launched a national campaign
28 October 2019Winsford mum, Emma Johnson will be speaking at Winsford Library about the amazing story of how her and her family fought to save the life of their son, Max.
Max was only eight when he suddenly fell ill and was diagnosed with dilated cardiomyopathy. He desperately needed a heart transplant.
On Wednesday 13 November at 6.30pm, Emma will talk about her book ‘Golden Heart’ and the story that launched a national campaign, changed the law and saved her son.
The book follows the ups, downs, twists and turns of their tumultuous journey, the pain of waiting for an organ, of seeing other children not make it and Max becoming the poster boy for a national campaign. It recounts how it felt to finally ‘get the call’.
The book also covers the relationship the Johnson family have built with Max’s donor family, with whom they have developed a close bond.
Max inspired almost 15,000 people to sign a petition which has successfully brought into law 'The Organ Donation Deemed Consent Bill', also known as an 'opt-out' organ donation system, in England and Northern Ireland, which will become law from Spring 2020.
Emma Johnson said: “We found it very cathartic writing the book, as so much of what was swimming around in our mind, could be put down on paper and this helped us to process what had happened, cope better with the ‘chronic stress’ of our situation and come to terms with our ‘new normality’. We want to raise awareness about organ donation and emphasise the incredible ‘second chance’ that organ donation bestows, through the power of a real life touching human story.”
Council Leader and Cabinet Member for Wellbeing, Councillor Louise Gittins: “I’m delighted Emma is able to come to Winsford Library to share her remarkable and moving story in her home town. Her book raises awareness about the importance of organ donation and how it can truly transform lives.”
The event will take place at Winsford Library on Wednesday 13 November at 6.30pm. Tickets are available at Winsford Library for £3 including refreshments and also via Ticketsource.
Copies of the book will be available to buy at the event.
Emma with husband Paul, Max and older brother Henry